Anti-Therapeutic Action: delayed diagnosis

Advancing Patient Advocacy in Mycology: Cultivating Collaboration in Education, Research, and Policy

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This paper highlights how patients with fungal infections and their caregivers are rarely included in discussions about healthcare policies and research funding, unlike patients with cancer or HIV. The authors argue that fungal diseases deserve more attention and resources, and that listening to patient experiences is essential for improving how these diseases are prevented, diagnosed, and treated. They propose that dedicated advocacy organizations, like the MyCARE Foundation, can help bridge this gap and ensure fungal infections receive the policy support and research investment they need.

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mGem: Sepsis and antimicrobial resistance in the context of advanced HIV disease

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This review examines how serious infections (sepsis) from bacteria and fungi affect people with advanced HIV disease, particularly in hospitals. The infections have become more dangerous due to antimicrobial resistance, and many cases go undiagnosed because of limited laboratory capabilities. The paper calls for better diagnostic tools and treatment strategies tailored to resource-limited settings where most advanced HIV disease cases occur.

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Awareness and perception of invasive fungal diseases among the Nigerian population

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This study found that very few Nigerians (only about 19%) are aware of serious fungal infections like candidiasis and aspergillosis, and most people don’t understand how dangerous these diseases can be. The researchers surveyed over 1,200 people and discovered that people with more education and higher incomes were more likely to know about these infections. The findings suggest that Nigeria urgently needs public health campaigns and education programs to help people recognize fungal diseases early so they can get proper treatment.

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Shared Vision for Improving Outcomes for Serious Fungal Diseases: Report of a Patient, Caregiver, and Clinician Summit

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Patients with serious fungal infections face significant challenges including long delays before diagnosis, substantial emotional and financial burden, and lasting effects on quality of life. A summit brought together patients, their caregivers, and fungal disease experts to share experiences and identify priorities for improving care. The group identified needs for better diagnostic tools, new treatments, improved medical education about fungal diseases, and patient support programs to help future patients and their families navigate fungal infections more effectively.

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Trichosporon species bloodstream infections in a tertiary care hospital in the western region of Saudi Arabia: A 7-year retrospective chart review from 2016 to 2022

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This study examined a rare but dangerous fungal infection called Trichosporonosis that affects the bloodstream in hospitalized patients. Researchers found that this infection kills about 60% of patients despite treatment with antifungal medications. The infection is often caused by a fungus called Trichosporon asahii and typically occurs in patients with weakened immune systems who are already hospitalized and using catheters.

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